A Serving Spoon in the Linen Drawer
Standing on the corner of Wells and Kinzie streets in
Chicago, overwhelmed by the sounds of crashing elevated trains, honking cars,
fire trucks, clicking heels, chatting people, engines and screaming traffic
cops. Combine all those sounds
with the smells of perfume, exhaust, acrid electrical stench from the trains
and the occasional whiff of sewage.
Add to this the blowing wind, the bump of an occasional shoulder, and a
moment in a crowded elevator - all of these overloaded sensory “pings” are part
of the delightful experience of the big city. Delightfully exhilarating for me that would likely prove an absolute
horror for Bethany.
The frightful,
echoing scream of a fire truck – a sound so strong you can smell it as well as
hear and feel it, would drive her already hyper-sensitive tolerances to
madness. Each single sensory
experience would represent a different, sharp, kitchen utensil searing through
her soul.
I could never bring her here. Could never get her to Navy Pier, likely won’t walk down the
Magnificent Mile with her. The
risk to me combined with the cost and pain to her is simply not merited. The sounds alone would crash through
her skull like a hammer through a window, resulting in a violent outburst of
anger and fear that’s impossible to contain. She’d find delight in the uneven sidewalks, tripping over the
curbs, laughing along the way. I’d
find horror in the uneven sidewalks not for the physical tripping hazard but
for the emotional tripping hazard, the low tolerance for her social status that
others trip over and stare at.
Walking with a special needs
person, you quickly notice the biases of the “open minded, big city dwellers” as they rush and brush by us on the
sidewalks. Suddenly, the “narrow minds” of West Michigan seem
quite sophisticated.
The food, she’d love.
The elevators – she’d be the only one to defy convention by laughing,
giggling; by looking strangers right square in the face. No peering into the farthest corner of
the lift for that girl. Take the
moment and connect with someone, even if it entails laying your head on their
shoulder or pinching their hand and squealing in delight. The elevated train – No way. She’d walk right off the platform,
that’s if she managed to get through the turnstiles on either end of the ride.
I see all these things and I realize that there’s a reason
that Sherry and I live where we do.
Live how we do. I can see
why all things center on West Michigan and our crazy group of wonderful people
who support us. I see why I work
where I do and how my life with the Crazy
Korean with the enigmatic smile has shaped me into a useful package more
than I’ve ever influenced her.
I can clearly see that there’s a place for everything, and
everything’s in its place. Its
nice once-in-awhile for me as a serving
spoon to be placed in the wrong drawer; the one that has the fine linens, cork-screws,
wine stoppers and little lobster forks. I’m not there long, largely because I don’t belong in that
drawer. For little while though,
rubbing shoulders with that class of utensil prooves a delightful change for me. For my little corncob skewer of a Korean, the shift would likely be both
unwelcomed and unappreciated. That’s
okay though, all those fine class utensils can’t hold a candle to the joy of
fresh, hot corn in the summer and will never be appreciated as much in their function
as will my little skewer. She has a narrow
function but a broad impact. That’s my
Bethany.
Beautifully written......
ReplyDeleteThank you for sharing, Dave. I just caught up with the last few posts. There is something about the "daily-ness of disability" that is both a curse...and at the same time, the greatest blessing of life.
ReplyDelete